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脊髓肌肉萎縮症慈善基金
Families of SMA Charitable Trust

最後更新日期 Last Updated Date: 2018-03-15 10:54:25


宗旨及使命 Mission & Objectives 喚起公眾對SMA的關注和了解; 籌募經費以提供經濟援助予SMA患者及其家人; 撥款資助有關SMA的醫學研究; 建立病歷資料庫儲存所有香港的脊髓肌肉萎縮症病人資料,以輔助醫學研究及通訊。
To increase and promote public awareness and understanding of SMA diseases in Hong Kong; To provide financial support and assistance to needy SMA victims and their families; To support and fund on-going medical research; To keep a central registry of SMA patients for research and communication.
機構口號 Slogan of Organization 支持FSMA, 人人有SAY!!!