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香港罕見疾病聯盟
Hong Kong Alliance for Rare Diseases

最後更新日期 Last Updated Date: 2019-09-29 22:30:52


宗旨及使命 Mission & Objectives 增加罕病患者及家屬對疾病的認識,促進病友互助自助。
推動公眾宣傳教育工作,增強社會對罕病關注、了解和支持。
透過政策倡議工作,反映患者的意見,促請政府制訂罕見疾病支援政策。
Enhance understanding of rare diseases among patients and their families; promote self-help and mutual support and positive attitude.
Promote public education on rare diseases, strengthen community awareness, understanding and support.
Ensure rare disease patients and their families’ needs and views are represented via policy advocacy and dialogues with Government authorities.
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